#What Do I Know About Rare Disease ?

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Do medical and paramedical professionals consider themselves sufficiently trained to deal with rare diseases?

According to a survey by the Rare Disease Observatory dating from 2015, 90% of respondents felt that healthcare professionals outside the hospital had insufficient knowledge of rare diseases. This can be explained by the rarity of the diseases represented. This can be a source of rupture in the health and life course of sick people and their relatives.


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