#What Do I Know About Rare Disease ?

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What daily needs do rare disease patients express?

– 52% of sick people express a need for financial aid
– 44% need technical aids (wheelchair, canes, bath seat…)
– 39% express the need for home help (household, toilet…)
– Home layout and ergonomic equipment are also a need for 25% and 22% of people respectively.

71% of the respondents underline the difficulty of obtaining financial and technical assistance at home through « heavy » and « frequent » procedures.


Find more information on Maladies Rares Info Service