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What are the challenges to improve the lives of rare disease patients?

– Getting out of isolation. This feeling is expressed by one in two patients.
– Strengthen psychological follow-up. One in three patients feel that they have to hide [@Question]their illness.
– Recognise and value the role of carers in the management of the disease. 70% express that the management of the disease does not leave them any free time.

 

To find more about the challenge of rare disease patients, take a look at Maladies Rares Info Services