#What Do I Know About Rare Diseases ?

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EURORDIS is a non-governmental alliance of patient associations created in 1997, driven by patients themselves. It federates 910 rare disease patient organizations in 72 countries. It is the voice of the 30 million people affected by rare diseases in Europe.
By linking patients, families and patient groups, bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the voice of patients and contributes to the development of research and public health policies and patient services.

For more information go to => https://www.eurordis.org/fr/qui-nous-sommes